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RARE Health Equity Summit

November 8, 2022 @ 8:00 am - November 12, 2022 @ 5:00 pm

Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies at the RARE Patient Advocacy Summit.

This year, we were excited to celebrate together again, and have virtual attendees join from their homes as well. We welcomed the opportunities to connect, learn, have fun, and celebrate the Champions of Hope!

Summit sessions provided attendees with insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies to take home.


November 8, 2022 @ 8:00 am
November 12, 2022 @ 5:00 pm


Global Genes